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In this issue: IRDiRC Working Group Recommendations for rare disease patients; The Access to Rare Indications Act could be a game changer...

"My parents taught me that apart from receiving help, I must also help. I have a big heart and I am a teacher of life for my family, a...

"I look forward to many more years and to support research to aid SDS patients in the fight against leukemia and Myelodysplastic...