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All Blogs & News


Announcing the Winners of the 2024 Million Steps Closer to #CureSDS Challenge
In this issue: The results of the 2024 Million Steps Closer to #CureSDS Challenges are in!


Free Genomic Sequencing for SDS through New Collaboration with Rare Genomes Project. SDS & Science Snapshots (2024-07-13)
In this issue: New research genetic testing opportunity for individuals suspected to have SDS!


Octavian's SDS Story: A Rare Gem with EFL1
"We have reached the stage of acceptance and trying to live life the fullest despite SDS" Shares Octavian's dad, Raul. Read this Romanian...
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