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Logos for SDS Alliance, SDS-GPS, Across Healthcare, Matrix, Critical Path Institute, and RDCA-DAP, alongside an illustration of researchers reviewing multiple datasets on a shared data analysis interface.

Your Data, Reaching Further SDS-GPS Joins RDCA-DAP by C-Path

Your SDS-GPS data just gained international reach. Learn how a new integration with RDCA-DAP is helping turn patient experience into real progress toward SDS treatments, and what it means for your privacy.

SDS Alliance News

Jul 23

Infographic titled 'Your Data is Safe, Your Voice Matters' with the SDS-GPS and SDS Alliance logos. Features an illustration of a person holding a shield with a checkmark next to a locked phone screen. Four bullet points list privacy commitments: Your name stays with us — only de-identified data is shared with researchers, IRB-approved protocol required. No patient list is ever shared — third parties never receive any identifying information, no exception. You stay in control — withdraw anytime, full transparency through informed consent. Data protected like in a bank — highest encryption standards, secure US servers, GDPR compliant, meets FDA requirements.

Your Data is Safe: What Newly Diagnosed SDS Families Need to Know About SDS-GPS

Newly diagnosed with Shwachman-Diamond Syndrome? Learn how SDS-GPS protects your privacy while helping advance research and therapies for SDS.

SDS Alliance News

Apr 28

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Your Data, Reaching Further SDS-GPS Joins RDCA-DAP by C-Path

Your Data is Safe: What Newly Diagnosed SDS Families Need to Know About SDS-GPS

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