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Illustration of corrected DNA symbolizing the edited SBDS gene for SDS with a question mark arrow pointing toward a patient figure, representing the promise and open questions of how to get gene therapy for Shwachman-Diamond Syndrome to clinical trials and into patients

How YOU can help move gene therapy forward for SDS

Gene therapy for SDS is advancing. Learn what's being developed, why base and prime editing matter, and how your perspective can shape what comes next.

SDS Alliance News

Jul 9

Learn why a genetic diagnosis is essential for confirming Shwachman-Diamond Syndrome (SDS). Understand your test report, SBDS gene results, and how to join SDS-GPS.

Understanding Your Genetic Testing Report: Key Elements for the Shwachman-Diamond Syndrome (SDS) Community and Why it Matters

Learn why a genetic diagnosis is essential for confirming Shwachman-Diamond Syndrome (SDS). Understand your test report, SBDS gene results, and how to join SDS-GPS.

SDS Learning Resources

Nov 3, 2025

All Blogs & News

How YOU can help move gene therapy forward for SDS

Understanding Your Genetic Testing Report: Key Elements for the Shwachman-Diamond Syndrome (SDS) Community and Why it Matters

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