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All Blogs & News


How YOU can help move gene therapy forward for SDS
Gene therapy for SDS is advancing. Learn what's being developed, why base and prime editing matter, and how your perspective can shape what comes next.

Eszter Hars, PhD
Jul 9


How to Fundraise for Shwachman-Diamond Syndrome Research: A Free Guide for Families and Supporters
SDS Alliance's free fundraising guide helps families and supporters raise funds for Shwachman-Diamond Syndrome research — on their own terms, at any level.

Eszter Hars, PhD
May 30


Your Data is Safe: What Newly Diagnosed SDS Families Need to Know About SDS-GPS
Newly diagnosed with Shwachman-Diamond Syndrome? Learn how SDS-GPS protects your privacy while helping advance research and therapies for SDS.

Eszter Hars, PhD
Apr 28
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