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All Blogs & News


Dr. Eszter Hars chosen by The Milken Institute to join FasterCures LeaderLink Program
SDS Alliance’s President and CEO, Eszter Hars Ph.D., has been chosen by The Milken Institute to join the FasterCures LeadersLink Program....


SDS & Science Snapshots (2022-03-20)
In this issue: Report of a new variant in DNAJC21 associated with SDS like symptoms; Plus, new FDA Guidance on Patient-Focused Drug...


Elevating Shwachman-Diamond Syndrome's Standing
From the Founder, Dr. Eszter Hars, Ph.D. This week, I had the incredible honor to be invited to speak at the 2021 Global Genes RARE...
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