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All Blogs & News
SDS Alliance Awarded Chan Zuckerberg Initiative “Rare As One” Grant
Woburn, MA (November 3rd, 2021) — The SDS Alliance is delighted to announce that the organization has been awarded a prestigious grant...
Nora's SDS Story with a Twist: Our Quest for a Cure
"I needed to push for what I thought my daughter needed. I was her voice." Shares Nora's mom Lisa. Read this US family's story, here. If...
Elevating Shwachman-Diamond Syndrome's Standing
From the Founder, Dr. Eszter Hars, Ph.D. This week, I had the incredible honor to be invited to speak at the 2021 Global Genes RARE...
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