About a mother's relentless quest for a cure for SDS
- Eszter Hars, Ph.D., President and CEO, SDS Alliance
- Feb 21, 2020
- 1 min read
Updated: Jul 24, 2021
By Emily Williams / Boston Children's Hospital
In this post, you can learn about the passion and efforts of a mother to a young daughter with Shwachman-Diamond Syndrome from the UK. Read the full article here: https://discoveries.childrenshospital.org/cure-shwachman-diamond-syndrome
Don't miss the video in the article (linked above), highlighting the research program for Shwachman-Diamond Syndrome and bone marrow failure at Boston Children's Hospital!
“I want to be making a difference. I don’t want to be in a position when Poppy is 20 — or at any point — to be told she is developing leukemia and not to have done everything I could. So, I’m doing everything I can now.” says Julia.
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