About a mother's relentless quest for a cure for SDS

Updated: Jan 16

By Emily Williams / Boston Children's Hospital

In this post, you can learn about the passion and efforts of a mother to a young daughter with Shwachman-Diamond Syndrome from the UK. Read the full article here: https://discoveries.childrenshospital.org/cure-shwachman-diamond-syndrome

Don't miss the video in the article (linked above), highlighting the research program for Shwachman-Diamond Syndrome and bone marrow failure at Boston Children's Hospital!

“I want to be making a difference. I don’t want to be in a position when Poppy is 20 — or at any point — to be told she is developing leukemia and not to have done everything I could. So, I’m doing everything I can now.” says Julia.

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Shwachman-Diamond Syndrome Alliance

To advance treatments and finding a cure for Shwachman-Diamond Syndrome.

Contact us:

Email: connect@SDSAlliance.org

Phone: +1-617-329-1838

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          Woburn, MA 01888

Shwachman-Diamond Syndrome Alliance is a US based not-for-profit 501(3)c corporation, serving the global SDS community.

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