The North American SDS Registry celebrates its 10 year anniversary by giving back to the community

Updated: Jan 3

The SDS Registry celebrated by hosting the SDS Family Day (conference) in Boston, MA, US.

A summary of the event was published by the SDS Registry in their newsletter, which they published in December 2019. Click on the newsletter image below.




"We benefited so much from the cutting-edge contents and all the opportunities to network with families, doctors, and researchers" - an SDS family attending the event



Shwachman-Diamond Syndrome Alliance

To advance treatments and finding a cure for Shwachman-Diamond Syndrome.

Contact us:

Email: connect@SDSAlliance.org

Phone: +1-617-329-1838

Mail: PO Box 2441
          Woburn, MA 01888

Shwachman-Diamond Syndrome Alliance is a US based not-for-profit 501(3)c corporation, serving the global SDS community.

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