How families are reshaping Shwachman-Diamond syndrome research

Updated: Jan 16

By Emily Williams / Boston Children's Hospital

In this post, you can learn about the experiences of two families affected by Shwachman-Diamond Syndrome, and about their transplant journeys. Read the full article here:

Don't miss the video in the article (linked above), highlighting the North American Shwachman-Diamond Syndrome Registry (SDSR)!

“People with SDS have an increased sensitivity toward the chemotherapy used during the bone marrow transplant conditioning process,” says Dr. Shimamura.

38 views0 comments
Follow us on Social Media
  • Facebook
  • Twitter
  • LinkedIn
  • YouTube
Shwachman-Diamond Syndrome Alliance

To advance treatments and finding a cure for Shwachman-Diamond Syndrome.

Contact us:


Phone: +1-617-329-1838

Mail: PO Box 2441
          Woburn, MA 01888

Shwachman-Diamond Syndrome Alliance is a US based not-for-profit 501(3)c corporation, serving the global SDS community.

© 2021 Shwachman-Diamond Syndrome Alliance |  Terms of Use  |   Privacy Policy