How families are reshaping Shwachman-Diamond syndrome research

Updated: Feb 21

By Emily Williams / Boston Children's Hospital

In this post, you can learn about the experiences of two families affected by Shwachman-Diamond Syndrome, and about their transplant journeys. Read the full article here: http://discoveries.childrenshospital.org/shwachman-diamond-syndrome-research/


Don't miss the video in the article (linked above), highlighting the North American Shwachman-Diamond Syndrome Registry (SDSR)!


“People with SDS have an increased sensitivity toward the chemotherapy used during the bone marrow transplant conditioning process,” says Dr. Shimamura.

Shwachman-Diamond Syndrome Alliance

To advance treatments and finding a cure for Shwachman-Diamond Syndrome.

Contact us:

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Shwachman-Diamond Syndrome Alliance is a US based not-for-profit 501(3)c corporation, serving the global SDS community.

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