Max's Story: A short insight as part of the 2020 Jeans for Genes

Updated: Aug 12, 2020

Max and his family are raising awareness for Shwachman-Diamond Syndrome and rare disease by participating again in the 2020 Jeans for Genes campaign, in Australia. Thank you!!!

Max with his family


Read Max's story, here:

And here:

Finding out that your child has a rare genetic condition [Shwachman-Diamond Syndrome] is hard enough. Discovering that it can progress into even more frightening conditions such as leukaemia and other life-threatening bone marrow disorders was truly terrifying for the family of three-year-old Max.

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Shwachman-Diamond Syndrome Alliance

To advance treatments and finding a cure for Shwachman-Diamond Syndrome.

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Phone: +1-617-329-1838

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          Woburn, MA 01888

Shwachman-Diamond Syndrome Alliance is a US based not-for-profit 501(3)c corporation, serving the global SDS community.

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