Max's Story: A short insight as part of the 2020 Jeans for Genes

Max and his family are raising awareness for Shwachman-Diamond Syndrome and rare disease by participating again in the 2020 Jeans for Genes campaign, in Australia. Thank you!!!

Max with his family


Read Max's story, here:

And here:

Finding out that your child has a rare genetic condition [Shwachman-Diamond Syndrome] is hard enough. Discovering that it can progress into even more frightening conditions such as leukaemia and other life-threatening bone marrow disorders was truly terrifying for the family of three-year-old Max.