Max's Story: A short insight as part of the 2020 Jeans for Genes

Updated: Aug 12, 2020

Max and his family are raising awareness for Shwachman-Diamond Syndrome and rare disease by participating again in the 2020 Jeans for Genes campaign, in Australia. Thank you!!!

Max with his family


Video: https://youtu.be/6eUsaZ6X_aw


Read Max's story, here: https://www.jeansforgenes.org.au/max-2


And here: https://www.moreechampion.com.au/story/6842741/meet-max-one-of-the-smiling-faces-of-the-2020-jeans-for-genes-campaign/


Finding out that your child has a rare genetic condition [Shwachman-Diamond Syndrome] is hard enough. Discovering that it can progress into even more frightening conditions such as leukaemia and other life-threatening bone marrow disorders was truly terrifying for the family of three-year-old Max.

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Shwachman-Diamond Syndrome Alliance

To advance treatments and finding a cure for Shwachman-Diamond Syndrome.

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