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All Blogs & News
Elijah (age 25)
In Loving Memory Elijah grew up not knowing about SDS. Neither did his family. He developed health issues around age 23 including MDS....
2022 Annual Global Virtual Fundraiser - Three Million Steps Closer to #CureSDS - Huge Success Again
This October, we conducted the third annual global virtual fundraiser to support SDS research. The theme this year was THREE MILLION...
Introducing Ribo & Somi, the RIBOSOME Superheroes
The last day of February is Rare Disease Day, but for us - rare disease families and advocates - every day is rare disease day. But no...
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