top of page
All Blogs & News


Introducing Ribo & Somi, the RIBOSOME Superheroes
The last day of February is Rare Disease Day, but for us - rare disease families and advocates - every day is rare disease day. But no...


2021 Annual Global Virtual Fundraiser - Two Million Steps Closer to #CureSDS - Huge Success
At the end of September, we conducted the second annual global virtual fundraiser to support SDS research. The theme this year was TWO...
bottom of page

