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All Blogs & News


The SDS PACER Course Is Now Live! Deep Dive into SDS, Research, and How You Can Make a Difference
The SDS PACER Course is a free, self-paced online course for Shwachman-Diamond Syndrome patients and families. Six modules covering SDS science, research, and therapy development.
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Oct 1


How YOU can help move gene therapy forward for SDS
Gene therapy for SDS is advancing. Learn what's being developed, why base and prime editing matter, and how your perspective can shape what comes next.
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Jul 9


Nora's SDS Story with a Twist: Our Quest for a Cure
"I needed to push for what I thought my daughter needed. I was her voice." Shares Nora's mom Lisa. Read this US family's story, here. If...
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Oct 22, 2021
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