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All Blogs & News


The SDS PACER Course Is Now Live! Deep Dive into SDS, Research, and How You Can Make a Difference
The SDS PACER Course is a free, self-paced online course for Shwachman-Diamond Syndrome patients and families. Six modules covering SDS science, research, and therapy development.
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Oct 1


How YOU can help move gene therapy forward for SDS
Gene therapy for SDS is advancing. Learn what's being developed, why base and prime editing matter, and how your perspective can shape what comes next.
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Jul 9


SDS Alliance Receives Grant from RTW Foundation to Advance Prime Editing Gene Therapy for Shwachman-Diamond Syndrome
SDS Alliance announces a grant from RTW Foundation supporting prime editing gene therapy research for SDS at Boston Children's Hospital. #CureSDS
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May 7
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