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All Blogs & News


Whitner's SDS Story and Journey to Bone Marrow Transplant
"My journey to diagnosis has been nothing short of an adventure, filled with many obstacles, hundreds of specialists, and much...


Kim and Harrison's SDS Story from the UK
"My son has taught me so much and through him I have grown as a person in stature, confidence and emotional stability. I have seen the...


A Cure for SDS: Our Mission
From the Founder, Dr. Eszter Hars “Mom, why do I have SDS? Why can’t I be like everyone else?” my daughter asks me… Imagine a world...
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