All Blogs & News

Example of a personalized SDS school trifold brochure generated by the SDS Alliance School Letter Tool, showing a student with photos, accommodation checklist, and emergency contact information, and links and QR codes Shwachman-Diamond Syndrome Alliance and the School Success with SDS guide.

New Resources for School Success with Shwachman-Diamond Syndrome — and How You Can Help Build More

SDS Alliance launches a free personalized school letter tool and comprehensive school guide for students with Shwachman-Diamond Syndrome — built by and for the SDS community.

SDS Alliance News

Aug 6

Logos for SDS Alliance, SDS-GPS, Across Healthcare, Matrix, Critical Path Institute, and RDCA-DAP, alongside an illustration of researchers reviewing multiple datasets on a shared data analysis interface.

Your Data, Reaching Further SDS-GPS Joins RDCA-DAP by C-Path

Your SDS-GPS data just gained international reach. Learn how a new integration with RDCA-DAP is helping turn patient experience into real progress toward SDS treatments, and what it means for your privacy.

SDS Alliance News

Jul 23

Illustration of corrected DNA symbolizing the edited SBDS gene for SDS with a question mark arrow pointing toward a patient figure, representing the promise and open questions of how to get gene therapy for Shwachman-Diamond Syndrome to clinical trials and into patients

How YOU can help move gene therapy forward for SDS

Gene therapy for SDS is advancing. Learn what's being developed, why base and prime editing matter, and how your perspective can shape what comes next.

SDS Alliance News

Jul 9

All Blogs & News

New Resources for School Success with Shwachman-Diamond Syndrome — and How You Can Help Build More

Your Data, Reaching Further SDS-GPS Joins RDCA-DAP by C-Path

How YOU can help move gene therapy forward for SDS

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