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Example of a personalized SDS school trifold brochure generated by the SDS Alliance School Letter Tool, showing a student with photos, accommodation checklist, and emergency contact information, and links and QR codes Shwachman-Diamond Syndrome Alliance and the School Success with SDS guide.

New Resources for School Success with Shwachman-Diamond Syndrome — and How You Can Help Build More

SDS Alliance launches a free personalized school letter tool and comprehensive school guide for students with Shwachman-Diamond Syndrome — built by and for the SDS community.

SDS Alliance News

2 days ago

Illustration of corrected DNA symbolizing the edited SBDS gene for SDS with a question mark arrow pointing toward a patient figure, representing the promise and open questions of how to get gene therapy for Shwachman-Diamond Syndrome to clinical trials and into patients

How YOU can help move gene therapy forward for SDS

Gene therapy for SDS is advancing. Learn what's being developed, why base and prime editing matter, and how your perspective can shape what comes next.

SDS Alliance News

Jul 9

New resource guide: SDS Alliance's free fundraising guide helps families and supporters raise funds for Shwachman-Diamond Syndrome research — on their own terms, at any level.

How to Fundraise for Shwachman-Diamond Syndrome Research: A Free Guide for Families and Supporters

SDS Alliance's free fundraising guide helps families and supporters raise funds for Shwachman-Diamond Syndrome research — on their own terms, at any level.

SDS Alliance News

May 30

All Blogs & News

New Resources for School Success with Shwachman-Diamond Syndrome — and How You Can Help Build More

How YOU can help move gene therapy forward for SDS

How to Fundraise for Shwachman-Diamond Syndrome Research: A Free Guide for Families and Supporters

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