top of page
All Blogs & News
The SDS PACER Course Is Now Live! Deep Dive into SDS, Research, and How You Can Make a Difference
The SDS PACER Course is a free, self-paced online course for Shwachman-Diamond Syndrome patients and families. Six modules covering SDS science, research, and therapy development.
-
4 hours ago
One Year Later: The SDS PFDD Voice of the Patient Report Is Published — and Your Voice Is Already at Work
The Shwachman-Diamond Syndrome Voice of the Patient report is now published and submitted to the FDA. Learn what the EL-PFDD meeting captured, how the report is used, and what comes next.
-
Jun 4
bottom of page