All Blogs & News

The SDS PACER Course Is Now Live! Deep Dive into SDS, Research, and How You Can Make a Difference

The SDS PACER Course is a free, self-paced online course for Shwachman-Diamond Syndrome patients and families. Six modules covering SDS science, research, and therapy development.

SDS Alliance News

Oct 1

Example of a personalized SDS school trifold brochure generated by the SDS Alliance School Letter Tool, showing a student with photos, accommodation checklist, and emergency contact information, and links and QR codes Shwachman-Diamond Syndrome Alliance and the School Success with SDS guide.

New Resources for School Success with Shwachman-Diamond Syndrome — and How You Can Help Build More

SDS Alliance launches a free personalized school letter tool and comprehensive school guide for students with Shwachman-Diamond Syndrome — built by and for the SDS community.

SDS Alliance News

Aug 6

Hands holding a spiral-bound copy of the Shwachman-Diamond Syndrome Voice of the Patient Report, from the Externally-Led Patient Focused Drug Development Meeting held in Cincinnati, OH on June 4th, 2025.

One Year Later: The SDS PFDD Voice of the Patient Report Is Published — and Your Voice Is Already at Work

The Shwachman-Diamond Syndrome Voice of the Patient report is now published and submitted to the FDA. Learn what the EL-PFDD meeting captured, how the report is used, and what comes next.

SDS Spotlight

Jun 4

All Blogs & News

The SDS PACER Course Is Now Live! Deep Dive into SDS, Research, and How You Can Make a Difference

New Resources for School Success with Shwachman-Diamond Syndrome — and How You Can Help Build More

One Year Later: The SDS PFDD Voice of the Patient Report Is Published — and Your Voice Is Already at Work

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